Children's Disability List of Groups and Listservs
This is page two of the Children's Disability List of Groups and Listservs, a directory of discussion forums, support groups, listservs and mailing lists for families of children with disabilities and special needs.
Learning & Education Mailing Groups and Listservs
Motor Impairment Mailing Groups and Listservs
Active mailing list to support parents and other care-givers of children diagnosed with a form of epilepsy.
To Join: Send a blank email to firstname.lastname@example.org or join online.
Parents of Children with
A parent group for childen with epilepsy.
To Join: Send a blank email to Parents-of-Kids-with-Epilepsyemail@example.com or join online.
PVL (PeriVentricular Leukomalacia)
A high quality mailing list for parents of children with Periventricular Leukomalacia.
To Join: Send a blank message to firstname.lastname@example.org or join online.
Listowner: Maureen Schneeberger
Mailing list for parents, families and caregivers of children with hydranencephaly.
Subscription To Join: Send a blank email to email@example.com or join online.
Listowner: Barb Aleman
Support group for families of children with Positional Plagiocephaly. "Plagio" is a deformation of the skull caused by any consistent external pressure such as inutero constraint, back sleeping, etc, or encouraged by torticollis, prematurity, etc
To Join: Send a blank email to Plagiocephalyfirstname.lastname@example.org or join online.
Discussion list for parents of children (of any age) with Microcephaly and related developmental disabilities. Share stories about your kids ups and downs, get advice and support, or just have someone to "listen".
To Join: Send a blank email to email@example.com or join online.
This listserve is to provide information and emotional support to parent's of children diagnosed with kernicterus or hyperbilirubinemia (high bilirubin). Kernicterus is a rare neurological disorder characterized by excessive levels of bilirubin in the blood during infancy. Symptoms may include lack of energy (lethargy), poor feeding habits, fever, and vomiting.
To Join: Send a blank email to firstname.lastname@example.org or join online.
NEURO Network (Neurodevelopmental
Education Understanding Reorganization Options Network)
Support group for parents whose children have been diagnosed with or are experiencing issues such as: SID (sensory integration dysfunction), RAD (reactive attachment disorder) or attachment issues, PTSD (posttraumatic stress disorder), ODD (oppositional defiant disorder), ADD/ADHD, anxiety, autism-spectrum disorders (including Aspergers and PDD-NOS), learning disabilities, and speech & language delays. Many of our children are adopted, although parents of biological children experiencing these issues are also welcome.
To Join: Send a blank email to NEUROnetworkemail@example.com or join online.
PVL (PeriVentricular Leukomalacia)
This list is to provide support and information to parents of children with Periventricular Leukomalacia. Discussions are welcomed about finding more information, raising a child with this disability and for applauding their many achievements.
To Join: Send a blank email to firstname.lastname@example.org or join online.
Parents (Tourette's Syndrome Parents)
An email group for parents of kids who have Tourette's Syndrome and related disorders like ADHD, OCD, Bipolar and high functioning Autism. Chatty. Also several associated lists.
To Join: Send a blank email to TSparentsemail@example.com or join online
Obsessive Compulsive Disorder in Children Support Groups
Prematurity Mailing Groups and Listservs
Sensory Integration Mailing Groups and ListservsGo to the Directory of Sensory Integration Support Groups and Listservs
Speech & Communication Mailing Groups and Listservs
Vision Mailing Groups and Listservs