Childrens Disabilities Information

Disability Books

Children's Disability List of Mailing Lists
Children's Disability List of Support Groups and Listservs

The Children's Disability List of Support Groups and Listservs © is a annotated directory of internet support groups for families of children with disabilities and special needs. Each disability mailing list has been validated for usefulness and family orientation. Children's disability discussion forums, support groups, and listservs for parents of special needs children are grouped by general content in this directory. 1997-2008.

Page 1 Disability Groups Page 2 Disability Groups
ADD & ADHD Groups
Adoption Groups
Allergies & Asthma Groups
Autism, Aspergers & PDD Groups
Birth Defects (Congenital) Groups
Down Syndrome Groups
Feeding Support Groups
General Childrens Disabilities Groups
Genetic Disorders

Learning Disabilities Groups
Motor & Movement Groups
Neurological Brain Injury
Obsessive Compulsive Disorder
Prematurity
Sensory Integration Groups
Special Education Groups
Speech & Communication
Vision Impairment Groups


Children's Disability List of Mailing Lists

ADD/ADHD Support Groups

Go to the Directory of ADD/ADHD Support Groups and Listservs

Adoption Support Groups

Go to the Directory of Adoption Support Groups and Listservs

Allergy & Asthma Support Groups

Go to the Directory of Allergy and Asthma Support Groups

Autism / Aspergers / PDD Support Groups

Go to the Directory of Autism / Aspergers / PDD Support Groups

Brain Injury Support Groups - see Neurological / Brain Impacts

Birth Defects / Congenital Support Groups

Cleft TAlk
Mailing list for families who have children born with cleft palate or cleft lip defects.
To Join: Send the message, SUBSCRIBE CLEFT_TALK2 Your Real Name to majordomo@bmtmicro.com
Listowner: Joanne Green

Cleft Chat
For parents of children born with cleft lip and/or cleft palate. Our list is open to all to freely express their feelings, get support and to learn in a positive environment.
To Join: Send a blank message to cleftchat-subscribe@yahoogroups.com or join online.

FAS Link (Fetal Alcohol Syndrome)
Mailing list for people interested in Fetal Alcohol Syndrome/Fetal Alcohol Effects.
To Join: Send the message, SUBSCRIBE FASLINK to majordomo@listserv.rivernet.net
Listmoderator: Bruce Ritchie

PD Heart (Pediatic Heart)
Active mailing list for families of children with Congenital Heart Defects (CHD) and Childhood Onset Heart Disease. (The Children's Health Information Network has a number of other pediatric heart lists. A complete set of their lists is at http://tchin.org/support/index.htm )
To Join: Send a blank message to: pdheart-on@tchin.org.or join online.
Listowner: Mona Barmash

CHD Families (Congenital Heart Defects)
A support group for resources and support for parents, grandparents and siblings of children born with Congenital Heart Defects. Affliated with Families Raising Awareness of CHD, One Heart At A Time.
To Join: Send blank email to CHDFamilies-subscribe@yahoogroups.com or join online.

Down Syndrome Groups

Down Syn (Down Syndrome)
A well established and active list for discussion of Downs Syndrome. Members include parents, siblings, other relatives, friends, therapists, physicians, and of course people with Down Syndrome.
To Join: Send an email with the message, SUBSCRIBE DOWN-SYN Your Real Name to LISTSERV@LISTSERV.NODAK.EDU or subscribe online
Listowner: Bill McGarry

DownSyn Forum (Down Syndrome for New Parents)
An active open, moderated web based board for parents of children with Down Syndrome. Topics include prayer requests, education, PDD/autism, open discussion and more. To join, visit the DownSyn forum at http://www.downsyn.com/phpbb2/index.php

Ups N Downs (Families Involved with Down Syndrome)
An international support group for family members of people with Down syndrome, in existence since 1995. The focus is on the family and not just the family member with Down syndrome.
To Join: Send a blank email to UpsNDowns-subscribe@yahoogroups.com or subscribe online.

Downs Heart
Support and information for those whose child is facing heart surgery, who has had surgery, those whose condition is inoperable, and those families who are bereaved. This online community is linked to Down's Heart Group, a UK charity which provides support and information related to the cardiac issues associated with Down's Syndrome.
To Join: Send a blank email to Downs-Heart-subscribe@yahoogroups.com or subscribe online.

Mosaic DS · Mosaic Down Syndrome
A support list for parents whose babies/children/adult children have been diagnosed with Mosaic Down Syndrome.
To Join: Send a blank email to MosaicDS-subscribe@yahoogroups.com or subscribe online.

Down Syndrome
A list for parents of children with Down Syndrome to brag, talk about concerns, medical problems, schooling,therapy, and so on. A good group for parents of young chidren but apparenlty unmoderated.
To Join: Send a blank email to down_syndrome-subscribe@yahoogroups.com or subscribe online.

Homeschooling and Down Syndrome
Discussion list for families who are homeschooling or want to homeschool their child with Down Syndrome.
To Join: Send a blank message to homeschoolinganddownsyndrome-subscribe@yahoogroups.com or subscribe online.

DS-Autism (Down Syndrome & Autistic Spectrum)
DS-Autism is a discussion list for families, parents, and professionals interested in the dual diagnosis Down Syndrome and Autism. The list is a service of the Down Syndrome & Autism Internet Information Center and Creating Solutions.
To Join: Send a blank email to ds-autism-subscribe@yahoogroups.com or subscribe online.
Listowners: Joan Guthrie Medlen, Donna Duffey, and Mary Beth Pilewski Paul.

Feeding Support Groups

Go to the Directory of Feeding Support Groups and Listservs

Infectious Diseases Support Groups

CMV (Cytomegalovirus)
Cytomegalovirus (CMV) is a herpes type virus with complications ranging from unnoticed to devastating, especially dangerous to a developing fetus. To list a few: death, miscarriage, intracranial calcification, Cerebral Palsy, seizure disorder, deafness, visual impairment, profound delays and mental retardation, microcephally, mal-absorption difficulties, feeding difficulties, CMV retinitis.
To Join: Write to listserv@listserv.syr.edu and put CMV in the body of the post or join online.
Listowner: Tina Konczol

GB Strep (Group B Streptococcus)
Group B Streptococcus (GBS) is a bacteria that is found in the in the vagina and/or lower intestine of 10-35% of all healthy, adult women. Approximately 8,000 babies in the U.S. contract serious GBS disease each year. Up to 20% of the babies who survive GBS-related meningitis may develop serious handicaps, including hearing or vision loss, varying degrees of physical and learning disabilities, and cerebral palsy.
To Join: Send blank email to gbstrep-subscribe@yahoogroups.com or join online.

Hepatitis-B
A mailing list where information and support regarding hepatitis B can be shared in an atmosphere of compassion and friendship. List members include those who are Hepatitis B sufferers, their family or friends, or any other interested parties.
To Join: Any message sent to HEPATITIS-B-ON@MAIL-LIST.COM will start the subscription process.
Listowners: Steve Bingham, Sheree Martin

P Kids-List
The primary mailing list for parents of kids with chronic viral infectious diseases.
To Join: Send the message SUBSCRIBE to PKIDS-LIST-REQUEST@MAIL-LIST.COM or join online.

General Children's Disabilities (Special Needs Parenting)

Go to the Directory of Parenting Children with Special Needs Support Groups and Listservs

Genetic Support Groups

Families of Angelman Syndrome
A place for families to talk about Angelman Syndrome and give each other support on raising a child with Angelman Syndrome.
To Join: Send a blank email to familiesofangelmansyndrome-subscribe@yahoogroups.com or join online.

ARPKD (Autosomal Recessive Polycystic Kidney Disease)
This list is for anyone who's lives have been affected by ARPKD Autosomal Recessive Polycystic Kidney Disease. Autosomal recessive polycystic kidney disease (ARPKD) is the most common heritable cystic renal disease occurring in infancy and childhood.
To Join: Send a blank email to ARPKD-subscribe@yahoogroups.com or join online.

Cystic L (Cystic Fibrosis List)
Exchange of information and support specific to cystic fibrosis. Members include people with CF and those who share their lives: medical professionals, scientists, researchers, parents, grandparents, spouses, siblings, friends and significant others.
To Join: Send an email with the message SUBSCRIBE CYSTIC-L Your Real Name to LISTSERV@PEACH.EASE.LSOFT.COM or subscribe online.

Ped PID (Pediatric Primary Immune Deficiency)
This list brings together parents and caregivers of children affected by a Primary Immune Deficiency.
To Join: Send a blank email to PedPID-subscribe@yahoogroups.com or subscribe online.

Panhypopituitarism
This list is for parents and caregivers who have children with pituitary disorders. Discussion may also include disorders of the endocrine system, hypoglycemia, growth hormones and steriods.
To Join: Send a blank email to panhypopituitarism-subscribe@yahoogroups.com or join online.

Pierrerobin · Pierre Robin Network
Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with Pierre Robin Syndrome.
To Join: Send a blank email to pierrerobin-subscribe@yahoogroups.com or join online.

Rare Genetic Disorders (Triple X or Trisomy X Syndrome)
This is a group for parents, parents-to-be, other family members, and the women themselves to share regarding the diagnosis of an extra X.
To Join: Send a blank email to raregeneticdisorders-subscribe@yahoogroups.com or join online.

Tri-Med
Discussion of medical issues related to Trisomy chromosmal disorders. The Trisomy Online also provides 5 different lists for Trisomy 18, Trisomy 13 and other related chromosomal disorders. Visit their website to see each topic.
To Join: Send an e-mail to Tri-Med-request@freelists.org with the word SUBSCRIBE in the subject line or join online.
Listowner: Karen Schuler

Torticollis Kids
For parents and caregivers of children with congenital muscular torticollis (CMT) to share information and ideas.
To Join: Send a blank email to Torticolliskids-subscribe@yahoogroups.com or join online.

TS Parents-3 (Turner Syndrome Parents)
A discussion group for parents of children with Turner Syndrome, a genetic disorder that affects about one in every 3000 girls.
To Join: Send a blank email to TSParents-3-subscribe@yahoogroups.com to or join online.

Go to Page 2 of Children's Disability Groups and Listservs.

Children's Disability List of Mailing Lists

Childrens Disabilities Information
ADHD | Adoption | Advocacy | Allergies | Autism | Books
Cerebral Palsy | Disability Travel | Feeding | Learning Disabilities | OCD
Preemies | Shopping | Special Needs Parenting | Service and Therapy Animals
Sensory Integration | Speech | Vision | Special Needs Forums Directory

Copyright Protected


Children's Disabilities & Special Needs Information www.ChildrensDisabilities.Info