Children's Disability List of Groups and Listservs
This is page two of the Children's Disability List of Groups and Listservs, a directory of discussion forums, support groups, listservs and mailing lists for families of children with disabilities and special needs.
Learning & Education Mailing Groups and Listservs
Go to the Directory of Learning Disabilities Support Groups and Listservs
Motor Impairment Mailing Groups and Listservs
Go to the Directory of Motor Impairment Support Groups and Listservs
Neurological Brain Impacts Mailing Groups and Listservs
Childhood
Epilepsy
Active mailing list to support parents and other care-givers of children
diagnosed with a form of epilepsy.
To Join: Send a blank email to childhoodepilepsy-subscribe@yahoogroups.com
or join online.
Parents of Children with
Epilepsy
A parent group for childen with epilepsy.
To Join: Send a blank email to Parents-of-Kids-with-Epilepsy-subscribe@yahoogroups.com
or join online.
PVL (PeriVentricular Leukomalacia)
A high quality mailing list for parents of children with Periventricular Leukomalacia.
To Join: Send a blank message to pvl-subscribe@yahoogroups.com
or join online.
Listowner: Maureen Schneeberger
Hydranencephaly
Mailing list for parents, families and caregivers of children with hydranencephaly.
Subscription To Join: Send a blank email to hydranencephaly-subscribe@yahoogroups.com
or join online.
Listowner: Barb Aleman
Plagiocephaly
Support group for families of children with Positional Plagiocephaly. "Plagio"
is a deformation of the skull caused by any consistent external pressure such
as inutero constraint, back sleeping, etc, or encouraged by torticollis, prematurity,
etc
To Join: Send a blank email to Plagiocephaly-subscribe@yahoogroups.com
or join online.
Microcephaly
Discussion list for parents of children (of any age) with Microcephaly and related
developmental disabilities. Share stories about your kids ups and downs, get
advice and support, or just have someone to "listen".
To Join: Send a blank email to microcephaly-subscribe@yahoogroups.com
or join online.
Newborn Jaundice
This listserve is to provide information and emotional support to parent's of
children diagnosed with kernicterus or hyperbilirubinemia (high bilirubin).
Kernicterus is a rare neurological disorder characterized by excessive levels
of bilirubin in the blood during infancy. Symptoms may include lack of energy
(lethargy), poor feeding habits, fever, and vomiting.
To Join: Send a blank email to newbornjaundice-subscribe@yahoogroups.com
or join online.
NEURO Network (Neurodevelopmental
Education Understanding Reorganization Options Network)
Support group for parents whose children have been diagnosed with or are experiencing
issues such as: SID (sensory integration dysfunction), RAD (reactive attachment
disorder) or attachment issues, PTSD (posttraumatic stress disorder), ODD (oppositional
defiant disorder), ADD/ADHD, anxiety, autism-spectrum disorders (including Aspergers
and PDD-NOS), learning disabilities, and speech & language delays. Many
of our children are adopted, although parents of biological children experiencing
these issues are also welcome.
To Join: Send a blank email to NEUROnetwork-subscribe@yahoogroups.com or join online.
PVL (PeriVentricular Leukomalacia)
This list is to provide support and information to parents of children with
Periventricular Leukomalacia. Discussions are welcomed about finding more information,
raising a child with this disability and for applauding their many achievements.
To Join: Send a blank email to pvl-subscribe@yahoogroups.com
or join online.
TS
Parents (Tourette's Syndrome Parents)
An email group for parents of kids who have Tourette's Syndrome and related
disorders like ADHD, OCD, Bipolar and high functioning Autism. Chatty. Also
several associated lists.
To Join: Send a blank email to TSparents-subscribe@yahoogroups.com
or join online
Listowner: Patti
Obsessive Compulsive Disorder in Children Support Groups
Go to the Directory of OCD Groups and Listservs
Prematurity Mailing Groups and Listservs
Go to the Directory of Preemie Support Groups and Listservs
Sensory Integration Mailing Groups and Listservs
Go to the Directory of Sensory Integration Support Groups and ListservsSpeech & Communication Mailing Groups and Listservs
Go to the Directory of Speech and Communication Support Groups and Listservs
Vision Mailing Groups and Listservs
Go to the Directory of Vision Impairment Support Groups and Listservs
Back to page 1 of Children's Disability Groups and Listservs.